Jennie Stormes says she never met her son. Stormes spends every available moment with 12-year-old Jackson, even sleeping in his room to reduce the risk of him dying in his sleep. But that doesn't mean they've had a substantial conversation… Dr. Elaine Wirrell, the director of pediatric epilepsy at the Mayo Clinic in Rochester, Minn., said those close to Jackson are seeing real improvement. Wirrell said Dravet patients who find the right mix of medication -- such as stiripentol, which she calls very effective -- can see their life improve.
The Express-Times, by Phillip Molnar, 12/2011