June 26, 2012

Patients Band Together Via Web, Persuading Doctors to Study Their Rare Condition


Nefertari Nelson-Williams was about to deliver her fifth child when she suffered a nearly fatal heart attack in 2008.  The healthy former model suffered a tear in a coronary artery from a rare condition called SCAD (spontaneous coronary artery dissection) that could have killed her and her baby…"We thought if we could find these people and get their stories out, doctors would see that this is something that should be studied and researched,“ said Leon, who enlisted Mayo Clinic cardiologist Sharonne Hayes to study SCAD.


Philadelphia Inquirer by Mark Taylor

Tags: Cardiology, Dr. Sharonne Hayes, heart attack, Philadelphia Inquirer, SCAD

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