July 5, 2012

Social Media Helpful to Those With Rare Diseases


Deb McGarry had just delivered the eulogy at her grandmother's funeral when pain shot through her chest. A wave of nausea followed…Thanks to efforts by McGarry and the online network of SCAD survivors, doctors at the Mayo Clinic in Rochester, Minn., have launched the first large-scale research project to learn more about the disease. The study is breaking new ground by using social media to recruit SCAD patients from around the world, doctors say. The plan is to input each individual's medical history into a database in hopes of identifying patterns.


WXIN by Erin Meyer

Tags: Mayo Clinic Rochester, medical history database, patterns, Research, SCAD, Social Media, WXIN

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