January 4, 2019

‘Find your strength’: Family with brain disease offers support while seeking cure

By Karl W Oestreich

Argus Leader
by Makenzie L. Huber

Kandie, Kayla and Bryan David have a mutated gene in CCM2, which distinguishes their strand of disease from two others: CCM1 and CCM3. They've all gone through brain surgeries, which have relieved Kandie Argus Leader Logoand Kayla from deficiencies. Bryan David still has issues with balance from a CCM that bled in his spinal cord. Mayo Clinic Neurologist Kelly Flemming has worked with the family since 2016. While the disease is "anxiety provoking" for many patients, Flemming doesn't see that with the Nelsons. Instead, the family "takes the good with the bad." "They're fantastic people with an amazing amount of resilience," Flemming said. "Kandie's experience helps the kids be less anxious because she's able to know what to Herald "

Reach: The Argus Leader is a daily newspaper in Sioux Falls, South Dakota with a circulation of more than 35,000 and its website has more than 431,000 unique visitors each month.

Additional coverage: Rapid City Journal, Wichita Eagle, Centre Daily Times, Yankton Daily Press & Dakotan, Bradenton Herald, Lexington Herald-Leader, Macon Telegraph, Madison Daily Leader, Roanoke Times, Merced Sun-Star, Columbus Ledger-Enquirer

Context: Kelley Flemming, M.D. is a Mayo Clinic neurologist. Dr. Flemming's research goal is to further elucidate the clinical outcomes in patients with cavernous malformations of the brain. How these lesions behave over time is important to patients who have them. Dr. Flemming and her colleagues are currently studying bleeding risk, seizure risk, risk during pregnancy and risk associated with various medications. You can read more about her medical research here.

Contact:  Susan Barber Lindquist

Tags: Argus Leader, Bryan David, Dr. Kelly Flemming, gene mutation, Kandie David, Kayla David, Uncategorized

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